Sunday, November 14, 2004

 

Oliveshit

    It's been half a month since my last post. I thought I'd better check in and report on how my month of pursuing a project for myself in depth has been going. Very, very well, thank you, for the project, me and not inconsequentially, my mother.
    It's obvious to me by now that my project will continue after this month but I am making so much headway on it that I'm not worried about devoting somewhat less time to it once the month of November closes.
    I'm reveling in doing mostly just what I want to do for a month. Of course I have given the "what I want to do" category wide latitude, as many of the chores I do to keep my mother well and happy are unavoidable and are done every day. If I have chores outside the house and she isn't interested in going and I don't feel like spending the hour here and the 15 minutes there and the 20 minutes elsewhere that it takes to bring my mother along, get her out and get her moving I don't. As it turns out she hasn't been out of the house except to get the mail since November 1st. That's fine with her and, except for slight twinges of guilt and concern, fine with me.
    We've played Sorry only once since My Month Of Me began. During that one game I realized how much it presently irritates me to play my side of the board and keep her attuned to what she needs to do on her side including such things as reminding her that:...anyway, normally I take this constant coaching in stride but since November 1st I haven't wanted to play Sorry for both myself and my mother. So, I haven't.
    I've judiciously allowed my mother to sleep almost as much as she wants. For the most part I've allowed her to awaken on her own, which means she usually arises around noon. She is not allowed to go back to bed for four to five hours after this but, if she wishes, once this mandatory "up" period is accomplished she may take a nap. After a nap she usually remains awake until late into the evening, sometimes past midnight, which has always been her preference. Even so, I figured that she is managing a good 14 to 16 hours of sleep a day. I asked her a few days ago if its bothering her to sleep so much.
    She laughed. "It's like a vacation!"
    Physically she is weakening some since I haven't yet felt like directing her through her exercises. Every couple of days I think we should reinstate her exercises today before she gets really weak. Then she stays up a little longer, moves a bit more around the house, stands and watches me at the Arcadia doors while I do work in the yard and I decide, nah, she can handle a month of relative inactivity.
    She's eating well although her prodigious sleep habits have dictated that she is eating two full meals and a snack (usually V-8 juice with cinnamon, half of a 3 oz bag of "lite" popcorn and five to seven large green olives stuffed with pimento, depending on whether I thinks we're going to have olives with dinner) rather than a full lunch. Her blood sugar is remaining under good to excellent control. After the 1st, in other words after I stopped harassing her about sleeping too much and not moving enough, her blood pressure settled down quite a bit. She is mostly on the low end dosage of lisinopril now and sometimes I don't even give her that because her blood pressure would go too low (for her). There have been a couple of very short bouts of high (for her) BP, usually when I become short tempered about something, although this is happening rarely during this period.
    I've also rediscovered some of my interest in cooking and have made some truly spectacular meals since this period began, most notably a beef pot pie. I'd never made a crust and was unclear about how to make the filling. I followed cookbook directions exactly on the crust, though, followed my instincts about what would make a savory, hearty filling and produced a magnificent result, so much so that we've decided to never buy a Costco pot pie, chicken or any other type, again. I finally got around to making muffins with Splenda®. They were a huge disappointment, both in flavor and texture. I noted with some sardonicism a few days ago that Splenda® has just come out with a half sugar/half Splenda mixture for baking. I know why, although I don't intend to use it. There is something about the chemical character of Splenda® that causes it to toughen flour mixtures and, of course, everything in which one uses it still has that peculiar artificial over-flavor. I started mixing Splenda® in her cranberry juice, though, since the type we use is the pure juice and is mouth puckering tart, about which she complained. I figured if I mixed some Splenda with it she'd be prone to drink more, which would be good for her urinary tract. She now requests it throughout the day, which may have something to do with us finally reaching what I hope will be a non-UTI plateau.
    I've forgotten from day to day to take her in for her monthly blood draws. I think she's doing okay, though. I also have forgotten more than a few times to give her 36 mg of iron protein succinylate during her midday snacks and I am speculating from her nail beds that her hemoglobin is running at about 9 (although I may be mistaken) but I vow to do better continually and I'm sure I will. At any rate, running at 9 doesn't seem to be hurting her. I expect, before the month's over, I'll take her in for a draw just out of curiosity but, still, when I think of the effort it takes to prepare her to go somewhere on a day by day basis I decide, nah, not today.
    She's kept squeaky clean, including her hair, although I haven't styled it for awhile. She enjoys the way she looks when its styled but, typically, once she's had a session in curlers under the heat of the dryer she wants to take a nap and this month I'm letting her. By the time she awakens both the curl and the styling cement I've applied to her hair have been pillowed out and she and I both forget about styling it.
    I've discovered over the last half month that if I feed my mother enough olives the oil changes the character of her shit felicitously; it's less sticky and less likely to spread throughout her entire uro-genital area on its own. This was an accidental discovery. I began feeding her olives with her V-8 juice during her midday snacks in order to cut down on the amount of popcorn she was eating (thus controlling her blood sugar a bit better) and allay her sweet tooth. Sour foods, such as brined pickles, olives and other pickled vegetables, are famous for their ability to settle and satisfy a craving for sweet. My mother loves green olives. After about a week of feeding her olives daily I noticed that her bowel movements weren't smearing themselves nearly as much as they had. Once I began to wonder why it was a short step to considering the inclusion of olives in her diet and remembering that olive oil is a millennia's old intestinal protectant (usually from toxins) and its ability to prevent constipation is legion. I suppose I could simply feed my mother olive oil but when I was dancing in high school one of my teachers suggested a periodic three day diet of apples and olive oil to keep us internally clean. Trust me, it doesn't take long to develop a gag reflex to the taste, and soon after the smell, of olive oil. Encouraging her to eat olives is not only healthy on all counts and has a welcome effect on the quality of her shit and the orneriness of her sweet tooth but she loves olives and never refuses them.
    I continue to insist on cleaning her after every bowel movement (she remains regular and eliminates without undue effort or any discomfort), which annoys her, but I've kept her UTI free since the last one and remind her with each cleaning session that, even as she hates me to do this, it is not my idea of how to spend several minutes every day or so, either. Since The Advent of the Olives, though, I no longer go through half a box of baby wipes cleaning her. 5 - 10 seems to do the trick.
    We've come to a truce about her bathing. MCS suggested that my mother's preferred method of immersed bathing may no longer be a good idea since it tends to encourage UTI's if one is prone to them. I've discussed this with my mother at length and given her the option of sitting on a stool in the tub and taking a shower. She hates the idea of having water beat down on her, though, so we've both made peace with the fact that she and I will be sink bathing her throughout the rest of her life.
    During this personal vacation I've been taking I've also happened upon set of directives issuing 'new' orders to caregivers on how to oversee an Ancient One's hospital care. One of these directives addresses urethral catheters and cautions that if one is absolutely necessary (often during surgery) the caregiver should insist that it be in for as short a period of time as possible. The directive explains that catheters often carry microbes that cause urinary tract infections. It doesn't mention that, in an old, inelastic urethra the trauma to the urethral walls of being held by the pressure of the catheter is difficult from which to recover. It also doesn't mention that even when a caregiver is super vigilant and super assertive regarding their Ancient One's hospital care if the hospital is inconvenienced by an Ancient One's urinary incontinence they will catheterize with abandon, slip it back in every chance they get and/or simply refuse to honor the caregiver's request not to use catheters for the staff's convenience. This is, of course, in large part due to current understaffing in hospitals and health care facilities, which is due in large part to the financial trauma the health care system in this country in undergoing including severely inadequate salaries for front line health care providers, which is due in large part to our traumatic transition from health care as a service delivered 'from on high' and couched in an occult environment to a service Average Jane and Joe should be able to perform for themselves as much as possible with providers becoming a health resource to the recipient rather than Health Dictators. Whew! I did that without taking a breath!
    Let's see, what else has been going on since November 1st? Mom and I have been collecting and viewing our favorite movie classics as we can. This is entertaining, keeps Mom up and gives me lots of time to work on my project even as I'm watching movies with her. I picked up a couple of beading kits on a hunch and Mom took to it very well, made an interesting, pretty bracelet the first night, from start to finish. We haven't done this since because keeping the beads separated became a necessary, labor intensive activity of I which I was the only one capable. I didn't enjoy it and decided I could wait until after November to come up with a system for keeping the beads separate and instituting it (which will also be labor intensive).
    I've decided as well that I won't be going to the book club meeting this month even though it is our anniversary meeting and members have pleaded with me to please come despite me not having read the book; I've read no more than the introduction. Why haven't I, during this month of My Vacation at Home? Because, even while on vacation, at least half if not more of my time is devoted to negotiating my mother's life so that she remains in good health and spirits and continues to include intense observation so that I can detect if this vacation of mine starts to sour on her. The rest of my time is devoted to my project. But this isn't the reason I've decided not to go. I don't want to spoil the time I've managed to carve out for myself this month in order to, yet again, attend a meeting in which all my energy will be directed toward my mother having a relaxed, enjoyable evening. I'm considering, in fact, canceling our plan to spend Thanksgiving at MPS home in Chandler primarily because I work double time not only on the holiday but for a day before and after when we travel for holiday visits and, falling as it does in the month of November, I'm not interested in doing that this year.
    Despite her increased sleep and decreased activity Mom's been reading and doing crosswords significantly more since I began my month long vacation. I explained my intention to her several times during the days preceding my vacation at home. I talked about how I was going to be spending less time making sure she stayed awake and moving. If she resisted going with me on errands I was going to let her win. Easily. One question. One answer. I explained why, going into detail about the amount of time, energy and focus it takes for me to do her life and that, after all these years, I needed a month to at least make an attempt at doing some of mine. I explained why I picked this month and what my project was going to be. We even celebrated the beginning of my vacation on my birthday, the day before it was to begin.
    With half that month now gone I can say, with surprise and pleasure, that she is doing fine. We can address her physical weakness after November. I have no doubt but what I'll be able to get her moving again. When this month is over will I simply drop my insistence on self-interested time and whirl myself vigorously back into my mother's life? Hmmm...I don't know. I expect that I will take a somewhat more considered approach toward snatching time here and there for myself, especially in light of how easily my lack of attendance is sitting with my mother. I'm sure I'll spend much less time on my project and other activities and interests that, in the last month, I've remembered I've missed. But I don't think I'll be abandoning them as I have. I hope not, anyway. I'm aware that in these last two weeks I may have become accustomed to misremembering how much time it takes for me to keep my mother up and moving. However, I'm also reminding myself of how much I love to follow my interests, to practice them, to allow myself time to think them through and create out of them. I don't think I'll be forgetting this quickly.
    I continue to have moments when I'm overwhelmed by frustration and hopelessness, although much fewer than previously. A couple of afternoons ago I had a reoccurrence of an episode in which I find myself smelling my mother's urine everywhere, even outside the house, despite knowing that I'm not carrying it on me. The following morning I suddenly began weeping as I was stuffing her urine soaked sheets and comforter into the washing machine. I'm now considering that I will never be free of these spasms as long as I'm taking such intense care of my mother. I'm feeling better about this now, though.
    Am I sacrificing some of my mother's well-being for my own? Yes, I imagine I am. I'm thinking about this often this month. She is doing much better than I expected but I remain aware that she is probably doing less well than if I hadn't taken a month 'off', rather, if I hadn't needed to take a month off (if I'd, in effect, been The SuperCaregiver of SuperCaregivers). I can think of no justification for what I'm doing. I'm not sure anymore if justification even applies to this issue. I think about resources, a lot:    After November 30th I certainly will continue with these journals about giving care to my mother more assiduously than I have this month, although I'm now thinking that I will probably not fill in all the stats I've recorded. I'll probably just pick up with December 1st's stats. It has, in fact, been a bit of a trial not to be able to find the time to write here, as I've often wanted to but have prioritized myself differently, this month.

Some notes to myself off the top of my head on issues about which I want to write in here after November 30th:
  1. Having strangers (and relatives, oddly, not friends, yet) thanking me for taking care of my mother. A new acquaintance addressed this for me some weeks ago at my request and triggered some new thoughts about this.
  2. "They say that anger is just love disappointed..." ---There's A Hole in The World; Eagles (I'm assuming Glen Frey wrote this song; it sounds like his style) and how this applies to caregiver anger.
  3. My newly discovered homemaking bent and the anxiety it is fostering.
    Well, folks, that's all for now. I'll be back here again, maybe not for another two weeks, but I'll be back. Know that I'm doing well, my mother is doing well, The Little Girl is doing well, our home is doing well, and we are all in good humor, not suffering any health crises, well fed and surprisingly relaxed.
    Later. Probably much.

Comments:
originally posted posted by brainhell: Tue Nov 16, 11:48:00 AM 2004

Wow. Thanks for the update! I've said before you should be writing a book about this, or appearing on This Ameriacn Life. And, bein ga sometime writer myself, I bet strongly that your project IS a book you are writing, but NOT one about taking care of an Ancient One.

While I do recognize that the overall emotional impact of taking care of a parent is not the same as rasing kids (they grow up and move out!), I do find that your description of playing board games is 100% the same.

It seems to me that you have a healthy way of staying sane and grabbing a little life for yourself, but I must say, while I am impressed by your enormous energy and dedication, the other siblings in your family ought to be chipping in, if not with time, then financially, to help pay for someone who will -- not replace you -- but be ther eunder your supervision to do a lot of the grunt work, insofar as you find them capable. Laundry, just for one thing.

I recently read and article by a woman who has hired many caregovers over the years, about how they tend to steal and underperform, but still. If you are there in person supervising, it seems like extra hands would help.
 
originally posted by brainhell: Tue Nov 16, 11:49:00 AM 2004

Andt hanks for the tip about olives. Something to keep in mind, as I myself have battled the Evil One. However, I don't savor eating olives and I don't have a sweet tooth. Hmm.
 
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